25th
That much closer to an answer
The blood tests came back last week. Probably to the disappointment of at least 2 people the Leukemia tests were negative. However, the Immunoglobulin tests showed something really wrong which is funny because until I basically demanded the Hematologist run them again he wasn’t going to.
IgA has dropped from 89 to 83 with 70 being baseline low
IgM is less than 10 with baseline normal being 40 so I basically have none
IgG was at 493 with baseline low being 700.
The only reason these tests were even considered was because I googled what could cause intestinal inflammation and there isn’t much but low Ig levels are one of them. Given that things have improved in some areas but not others I forced the issue and asked for them to test for this. This just proves to me that you really have to be your own advocate when it comes to medical care.
So, next week (Monday) .. I will be back at OHSU to get a test to confirm the diagnosis clinically called CVID/PID. They will draw labs to check the antibody (Ig) counts again, then I’ll immediately get a Tetnus shot to attempt to stimulate my immune system to do something and if the Hematologist and I are right, it won’t do anything and we’ll have our answer after some 3+ years of trying to figure this out.
