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I'm just a nerd coming to grips with dealing with a chronic illness. I write the occasional quip about technology and cover my journey from the unknown to diagnosis and the effects on my life and that of my friends and family.

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Jun
30th
Tue
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Now We Wait

I completed the first half of the testing procedure yesterday for CVID. Originally, when I spoke to the nurse last week she told me I would do labs, get the vaccine then do a second set of labs immediately afterward, this isn’t the case. I did my first set of labs then went to the Hematology Clinic and got the TDP and Pneumonia vaccines. In 2-3 weeks I will go back and have labs drawn again to see if I’ve made any antibodies in response to the vaccines.

If I don’t, then we’ll have the answer.

If I do, well then I’m out of ideas.

As an aside, I was treated in the infusion section at the Hematology Clinic and I have to say I was a little bit saddened being there. The TDP vaccine hadn’t arrived from the pharmacy yet so they had to send someone up the hill to the main campus to get it, so while I waited I went to get some coffee and next to the coffee machine in infusion area is a pegboard upon which there were more than a dozen knit caps despite it being in the mid 70’s today in Portland, there were also a couple wigs as well. As I sat back down in the reclining chair they have you use when you’re getting infusions I could see patients getting their PICC lines cleaned and some who were obviously getting Chemotherapy. Yet not a single one of them looked sad or upset. They were all smiling. Why was I sad then? I felt sad that I was there for a simple vaccine while these people were battling for their lives and somehow it felt unfair of me to be there. I don’t know how else to explain it. Their smiles however, show the endurance of the human spirit and faith.