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I'm just a nerd coming to grips with dealing with a chronic illness. I write the occasional quip about technology and cover my journey from the unknown to diagnosis and the effects on my life and that of my friends and family.

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Feb
16th
Tue
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Hanging on by a thread

We’re +7 days since my infusions and things are basically even at this point, no better but no worse. I was diagnosed with a minor pneumonia the weekend leading up to the first infusion on the 8th and things cleared up nicely after a weeks worth of antibiotics but things are slowly going downhill again. While I’m incredibly excited at the prospect of getting off antibiotics eventually, this is just a reminder that IVIG is not a miracle drug and I’ll have to keep getting it monthly to build up proper immunity.

The newest blood tests have shown some things going from semi-normal to worse and I’m faxing them over to my primary care doc so I can get his input. It appears that I’m now into anemia territory and having some issues with malnutrition despite the fact that my appetite has returned quite nicely in the past 2 months (my weight however has remained stable).

That’s about it for now.